It’s been a busy few months. I have a few days of down time so update on the blog time.
The last time I posted was to tell you all of my decision to cancel my trip to India for my HSCT.
Had I of still been going, I would be doing the packing and all those final bits and pieces by now. I still believe I made the right decision, it seems that everyone that have gone for their treatment have had infections before they start their treatment, now one or two have said that yes, its plausible that the patient would have had and infection as they have been feeling poorly. There is also the wonder if the UK GP’s are checking for infections thoroughly. You’d hope so but it has made a few of us think differently.
May, was a tough month for me, still upset about events in April, but determined to move on from it and start to look forward. I gave the bad news to my boss that I would not be leaving work when I was due to. Actually, he was really good about it, understood my reasons.
So my HSCT friend Alex Green made contact to remind me that I had agreed to do a parachute jump, he was more eager now to help me raise more funds now that I was at the back of the queue for Russia knowing it was a further $20k more. His family and friends helped raise a further £1,500. They are totally amazing.
I booked our tandem jumps, my friend from Holland wanted to join in too. Only one thing was in the way, my weight, I had to lose 1 stone before I could jump and just one month to do so. I felt so determined to do it I was so hard on myself, no sweets, no pudding, no ice cream, no treats. I did it, I didn’t want to let anyone down. Truth be told, I was scared. I hate heights I really do.
June 3rd sky dive day
A lot of people do a skydive to raise money for charities and fundraisers. I had a great team with me. My lovely husband was there to reassure me that I would be fine. Alex and his lovely wife Jennifer, Agathe from Holland stayed with us for the weekend, she loved the day, Rachel who helped arrange the day was there to help support me (she jumps all the time, nerves of steel that girl and another MS patient who is fundraising herself for HSCT) Also a surprise, Anne who has had her HSCT at the beginning of the year in Mexico came too, she was still very vulnerable to germs so was careful not to get to close to any of us, No hugs for Anne, I didn’t want to give her anything to compromise her recovery, she was doing well recovering and still is.
It was amazing to have so many HSCT patients pre-and post-treatment there with me Anne and Alex doing amazing, Rachel and me still raising funds for our own treatment.
What can I say about the skydive, wow it was amazing but I was scared going up in the small plane, although my tandem instructor Chaz was brilliant, he knew I was scared, told me what to do and when to do it, although he made me wear a silly hat because it was my fundraiser. So up we went to 10 thousand feet, the door opens and I was the first to go.
Chaz and me shuffle to the door and as I am attached to him, I am dangling out of the plane legs and arms in position, we jump I close my eyes, I psyche myself to open my eyes, we are free falling through clouds, I hold my breath…. Yes, I know. I remembered what they said in training I can breathe through clouds (see I’m not the only one if they tell you that in training) we are falling, falling fast we’ve hit terminal velocity. Quite calmly I look down and think ok this is it, this is how I die I have no control… then woosh up we go as Chaz opens the parachute, I look around things look like i’m viewing via a goldfish bowl with the goggles on, Chaz tells me to take them off and really look around, wow what a view. Did you know that the parachute’s are computerised now, If Chaz didn’t open the chute with the first pull, there is another pull he can use, plus the computer knows what height and speed we are going and if we fail to open the chute, it would do it for us. We descend very, very slowly, there isn’t a breeze, it gives me the opportunity to look for Alex and Agathe who have also jumped, Agathe is screaming with joy she is almost down, she jumped after me, Alex is high above us laughing. We get ready to land and I try to get into the landing position which is difficult to do when you falling, I can’t do it, Chaz takes control and tells me to do another position which I could do and he gets us down safely, although I hear a crack as we land, oh no I think, I broken a bone oh god no I have work Monday, I tell the sky dive team who run towards us, Chaz unclips us and I am asked to try and move slowly, I get up on my knees, ok no pain, I haven’t broken anything. Phew thankfully it was a twig.
I didn’t feel the rush of adrenaline that most do, would I do it again, hopefully not. But I am proud that I did do it, one off the bucket list and all that.
I’ve also been busy with the fudge business. We were invited to join other market traders to Saturday Family Market in Portishead near Bristol, it has been amazing, lovely team,
We also were invited to do Vegfest Bristol, we spent weeks making vegan fudge, it was a brilliant show, we made lots a of new friends, we were invited to advertise in Cook Vegan. Our advert can be seen in the magazine not online. We had the local paper do an article on me the fudge and Russia, loving the title. Even The Sun ran the story.
Since April, I’ve been so busy, hardly taking any time for myself, I just wanted to keep busy and not think of what if’s with India, I really cannot believe how much it upset me.. I’m going to Russia, the best place in the world for my treatment, you get what you pay for, that’s why it costs $50k rather than the $30k in India, we have £29k so we need to raise another £13k minimum.
Wow a bit of a blog there, well I thought it was time to update, have been so busy I knew that I needed to make time to update you all.
We have most of our weekends booked with markets, and have applied for a few more, trying to fit in fundraisers too.
A few days ago, I was talking to a friend on Facebook who has battled and won against cancer, she had told me a few weeks ago that it was back. Then she told me that it was terminal, there wasn’t anything else the doctors could do for her, they gave her 2 years, I was shocked and so sad, why was it the good ones why!! She told me that she wanted to see me have my treatment in Russia before she dies, this makes me more determined to do this to push myself as hard as I can to raise the funds, I can’t let her down, she has been so supportive of me and my journey to HSCT, I must do this, the clock is now ticking.
Thanks for reading.